As part of the DIPG Collaborative we have dedicated a site for newly diagnosed at DIPG.org
Learn what to do after diagnosis, get the facts about Diffuse Intrinsic Pontine Glioma (DIPG) and find much needed support by visiting DIPG.org, a site hosted by the DIPG Collaborative dedicated as a resource for those newly diagnosed.
This site will help guide you through understanding this diagnosis, assist in choosing treatments as well as facilities familiar with DIPG patients. DIPG.org has the most relevant statistics substantiated by research and remains current because it is updated frequently.
Stefani and Steve Healey, founders of The Brooke Healey Foundation, have been in your shoes and understand the questions and concerns you have and anxiety and fear you feel. DIPG.org, is a reference that will help, but if your research leads you to more questions or you need further clarification, reach out to The Brooke Healey Foundation at firstname.lastname@example.org. We will do our best to help and provide any direction we can. Also Stefani and Steve are willing to talk with you directly and be another source of support.
Scroll down to see Brooke in different phases of her 8 month struggle.